A letter from the heart, written by a father to his profoundly handicapped daughter You think you’ve got life sorted and then a child like Stevie comes along. But don’t think of Stevie as a tragedy. Don’t think of Stevie as a problem. Stevie was just a little girl. A gift to the world. A lot of bad things happened [...]
Listen to author Jonathan Chamberlain reading from his memoir Wordjazz for Stevie.
In 1986, Jonathan Chamberlain and his wife Bernadette had their first child, Stevie, a daughter. Stevie was immediately diagnosed with Down’s syndrome. A few months later it became clear that she had a serious heart defect that required a ‘hole in the heart’ operation. Something went wrong during the operation and Stevie suffered a momentary lack of oxygen that left [...]